Hsct stem stem cell transplant one year post

https://laurelinobrien.com/2017/12/13/hsct-stem-stem-cell-transplant-one-year-post/

Advertisements

Hsct stem stem cell transplant one year post

A disease has stopped progressing. But my disease is still there. I live in New York and the winter brings on multiple sclerosis symptoms very badly. I am much stronger. And I have gained 30 pounds mostly in muscle. I can get in and out of bed on my own. I can get on and off the commode on my own. I still cannot walk without a walker but I do not use my wheelchair and anymore. I thought I would to be farther along after a year. I think both my husband and myself were hoping for a miracle. But the fact that it has stopped at the progression has at least alone saved my life. The doctor and Mexico said that I would not know my results until about 3 years post. I don’t know how much more I will get in healthy here but I hope I will be. I am still hoping for that miracle. I hope I get a little more out of this then I have but I cannot complain. For it has stopped at the progression of my disease. And it is still possible that new neural Pathways can grow from my brain to my nerves. A big problem is my sense of balance. Unfortunately that is all in the inner ear and I must just hope for new neural Pathways to grow. I must stay optimistic. Everyone says I look much healthier. It is difficult for me as I have body dysmorphia and I can no longer see my ribs. Which of course makes me feel fat when I know I am not. So I try to avoid the mirror and my husband is buying me new pants for Christmas as none of mine fit me. Stem cells have definitely been a Journey. And a journey I would do again as if I had not gotten them I may be bed ridden by now and I am not. So I have to keep my hopes up. I don’t have to keep dreaming of a bright future. But after one year I can’t help but feel a little disappointed. I know I should not. I should just be grateful. But I don’t think I will ever have a normal life that everyone else hats. Not hats hey it’s not hats my voice application is screwing up sorry about that guys. Anyways stem cells are still a great thing. I have been diagnosed with multiple sclerosis for 20 years and I wish they had been unavailable when I was younger. I probably could have stopped and then. But America is so blinded by the pharmaceutical companies that instead they made me a guinea pig for all types of the medications that did not work. I am a very grateful woman with multiple sclerosis today. I am not trying to sound like I am not grateful. I just hope and pray that my white blood cells keep dividing and grow new neural Pathways and I see a little more from my procedure. I still have very short hair. And it has grown in super curly from chemotherapy. Long beautiful hair. But it least at age 37 I don’t have any gray hairs yet and I am grateful for that. My bowels and my bladder still work on and off. Because I am still on opioid medication it is hard to truly see the success of my bowels. Bernie. & a journey I would do with God as this I had not gotten them I may be bedridden by now and I am NOT so I have to keep my hopes up I need to keep dreaming of a break future but after one year I can’t help but feel a little disappointed I know I should not I should just be grateful. I don’t think I will ever have the normal life that I have for you want to help that has not had had is not hat my voice application is growing up sorry about that guys anyways themselves are still a great thing I have been diagnosed with multiple sclerosis for 20 years and I think had available f***** probably precious Americas so blinded by the pharmaceutical companies that didn’t send me a guinea pig for all types of that kitchen work I am a very grateful that supposed to closest to say like I’m grateful I just hope pray that my white blood cells keep fighting and grow girl pathways and that he left my procedure I still have very short hair and it has probably from therapy over I miss my very long beautiful hair but at least at 8:37 I don’t have any gray hairs yet and I am grateful for that my bowels and my bladder still work on and off because I am still on opiate medication it is hard to truly see the success of my bowels but my bladder definitely works better overall I would go back to Mexico in a second it was completely worth it I just hope that post two years I will have more healthy stories to share with you keep your eyes on the prize my friends and never give up and never surrender we cannot let anything for it we all only got one I don’t is now 7 years old he is constantly asking her teacher to go to the nurses office I am worried it is because her mother is sick but you might just be trying to get out of work and that’s what I’d like to think it is she has such a strong little soul and I am so grateful to have her and an amazing husband I believe I would have made it better be in good health all of my friends I will keep you updated as the month progressed hopefully I will have every time the progression has stopped. And that is some miracle so great thank you to all we have supported me and it is for me to go to Mexico me so much to me power of community continue to keep you all updated. Peace and love Laurelin🌻 it’s always I apologize for grammatical errors as I still must use a voice application and cannot type or write yet. But hopefully I will someday.

Stem cell transplant almost 11 months

I am finally beginning to see good stem cells results. I can always walk with my Walker. Get in and out of chairs. Get off the couch. Get in and out of bed on my own. Get on and off the commode on my own. Girls and bladder are always getting better. My house is finally clean enough that I’m not embarrassed when people stop by. My fine motor skills are still terrible. The Tremors will take a long time to go away. Until then I cannot dust-up hi. Or write my name. Or cook. But things are definitely getting better. Stem cells have been a blessing. I have gained a lot of weight due to steroids. I asked if the dose can be lowered and it cannot. So I must just deal with this steroids until February. I was severely underweight so gaining 30 pounds actually helps me. I just have to monitor so I don’t gain too much more. But in general things are looking better. As always I highly recommend to you if you have an autoimmune disease to seek out stem cells as an option. They have made a huge dose difference in my life. I think everyone who helped me get them and in general I absolutely love Mankind and I hope we can learn to love each other. 6’s so far I will keep you updated.

 Peace And love Laurelin 🌻

Scrambled eggs

I knew that high-dose chemotherapy could cause infertility. I was not aware until today that stem cell transplants also cause infertility. And if your over the age of 35 chances are you are sterile if you’ve had both. I don’t know how I feel about this information. A part of me feels really. A part of me is sad. Not because I want to have another child. Because knowing that I can’t have one kind of makes you feel like a defective woman. And the busily slim chance I did get pregnant. My eggs are now scrambled. A child would have genetic de formalities . With the progression of my multiple sclerosis. A child would not make sense to have in my life anyways. I am so blessed and lucky to have the one I have. And doctors told me not to have her because I would have a huge multiple sclerosis attack. Which I did have. But my gorgeous daughter was worth it. It is strange to look in the mirror and still see a youthful face. And a youthful body. But now they working woman’s body anymore. So it is okay. We have to take the good with the bad. Stem cells were a success. Chemotherapy was a success. And I have to look at what I have done so far as a success. It still feels very strange to me. But that is just the way life is. We take the cards we are dealt and we play the hand out. We don’t fold ever. Even if you don’t even have one pair. Bluff. Even if on the very slim chance I have another menstrual cycle it probably would not have a egg. And if it did that egg is scrambled. I will never take my child for granted. It just makes her even more important to me. Even more of a blessing than I already knew I had. I have been through a lot in my life. I will get through this just like I get through everything. With a smile on my face. With the knowledge of knowing I did the right thing. Never second-guess your gut feelings. I got told me that chemotherapy made me sterile. I did not know that stem cells also can cause infertility. But I say it again. It is okay. It is okay to feel a sense of loss. Sometimes you just have to feel the feelings and let them fade away. Or in this case write a blog about it. I am so very blessed in so many ways. They may not ever have another child but I may have working legs again. So take the good with the bad my friends. Know in your heart that you have made all the right decisions. Know in your heart that everything happens for a reason. Sometimes we have to take a giant leap in life. I took a giant leap. A giant leap of faith. There is a reason I named my daughter that. I have faith. I have faith that everything is going to work out the way it is meant to. And if I feel lonely and blue I will get another cat. Because a cat Will Never Let You Down. As I write this I have a cat in my lap. Softly sleeping. And letting me know it will all work out. As the saying goes you have to break a lot of eggs to make an omelet. There are no more omelets for me to make. That’s okay. Life is funny that way. It takes you down roads you never expected to go down. At the end of the road is a rainbow.

Peace and love Laurelin🌻