Post hsct stem cells 1 and 1/2 years

Many people have a misconception about stem cells. They think that you are going to walk off the plane and be walking. I can now walk with a walker because of stem cells but unfortunately the reality is I will probably never walk on my own again. This does not mean that stem cells have not worked. I continue to be much stronger. I can continue to move my right leg. My right leg had become totally useless and paralyzed. Yes I still use a commode. But I never need help from my husband getting on or off of it or in or out of that. This is a huge success. My multiple sclerosis will never go away. What stem cells have done is stopped the progression of my disease. When I was 18 years old I was told by doctors that I would probably live to around 50. Anything after that would be a blessing. Because of stem cells I now look forward to watching my daughter grow up. I now look forward to living a full life with my husband. Yes I will always be handicap. But knowing that you possibly have another 30-plus years and you is amazing. So they say that you do not see the full results of your transplant for 3 years. So at the halfway mark I am at peace and happy with my success. Anything else is just icing on the cake. Stem cells probably will not do too much more in the way of reversing the damage multiple sclerosis has caused. However it has given me life. I look forward to living a long life with my family. A life that I in no way we would have had without stem cells. To you and to all my followers and readers out there. Remember that there is always hope in the world. Never lose Faith In Yourself faith in a higher power and faith that things can get better and any Endeavor you are trying to achieve. Peace and love to all of you my friends

Early menopause

Sucks. It just stinks. Because I had high-dose chemotherapy and stem cell transplant it made me infertile. Basically menopause. No I do not want to have any more children. But a at age 37 knowing that I have no prospects really stinks. I did not think it would bother me as much as it does. My husband found my insurance card that’s only for pregnancy prevention items and it made me cry. Because he put it back in my wallet. I then mention to him that I cannot have any more children. It seems crazy to me that I am so bothered by the fact that I won’t get cramps every month and be miserable anymore. But when you take away what makes you a woman it does nothing but make you feel Unpredictable and kind of worthless. I guess I just was ready for this. I knew infertility was probable but I deep down did not think it was possible. I guess it is God’s way of letting me know for sure that I am only meant to have my one Miracle child. It makes me appreciate her so much more. It makes me want to protect her so much more. She is my lineage. Without her my relatives on especially my maternal side cease to exist. She is so special and so wonderful. I need to just be grateful for the fact that I was able to carry one child. And let go of the fact that there will be no other children in my book of life. Wait…. Grand children!

The pen is mightier than the sword

Words can hurt. Words have power. I am always telling my daughter to be very careful with the words she uses because they have power. I try to never swear other than on my blog. I try to be very delicate with my wording. I often lose control and blow off steam when I should not. But I am always the first to admit wrongdoing. This goes for other people too. People do not know how much their words hurt me. I stick 2 them and everything they say. There is one thing my father has always said to me that has always stuck with me. When you give a gift you should not expect anything in return. You should just feel good about giving the gift. I must admit I have been having some troubles with my multiple sclerosis. troubles happen it painful when I think I have let people down. It is even worse when they tell me I have basically let them down. I have no control over my body. People think that because I occasionally smoke a cigarette that it is the reason for my body not working. This is absolutely not true. The two have nothing to do with each other. And I used to smoke marijuana like crazy and I gave it up a long time ago. I try to stay as healthy as possible but stem cells are not overnight fix. I feel like I have let people down that I have taken out loans for me to get themselves or have invested money in my go fund me page. I have seen amazing results but I still do have bad days. When I do have these bad days I do not need to hear negativity. It only makes things worse. I must stay in a positive frame of mind. And I certainly don’t need to be reminded of how much people have tried to help me. If the shoe was on the other foot I would do the same thing. With the exception of the cruel words. Sometimes people don’t even realize that they are being cruel. I understand this. It is not only human nature but it is frustrating for other people as well. I know so many people. People that have thought I would see overnight Improvement. It does not work that way. It takes years. My brain needs to grow new neural Pathways in order for certain nerves in my body to work again. It is frustrating for not just me but the people who have tried to help me. But even when I try to explain this to people they don’t seem to understand. I feel lost in this fog of emotion. The pen is mightier than the sword. You might as well be stabbing me in the back with your words that cut me down. But I must remain positive. I must be steadfast and believing that stem cells are going to work throughout the years. I must not given to the daggers of other people’s words. So I tell all of you my friends to be careful what you say. I know I am human and I slip up to. Or try to walk in the other person shoes. It is a lot harder than people think. Peace and love and good health to all of you my friends.

 good MRI

I recently had an MRI for my multiple sclerosis. I have had one every year or every other year for 20 years. For the first time I got back MRI results that are good. I have no new multiple sclerosis brain activity. I do have a few lesions that are little bit larger than my last MRI. But my last MRI was in 2014. So they are only bigger because I  haven’t gotten one for 3 years and the multiple sclerosis was getting worse until 2017 in December. So this scientifically proves that stem cells work! It has totally stopped the progression of my disease. If I had not gotten stem cell treatment I would have eventually be bedridden. But that’s what the pharmaceuticals companies want. That is why stem cells are not legal for Progressive multiple sclerosis in the United States. There are only a few doctors in America giving stem cells treatment for their illness. Stem cell treatment has a high risk for living your life. However, the ones that are giving out in America has had many fatalities. Going to Mexico for this treatment was the best thing I have ever done with my life. Having my daughter is the first thing. However , without stem cells I would not be able to get out of bed to be with her. She has already noticed that I am so much stronger and I am able to enjoy play with her. We play board games. Play with dolls. Play school. And it has made such a huge difference in my family’s life. Since before Christmas my daughter has been complaining, something that she calls frustrated feet My husband took her to he doctor and he reported that there was nothing physically wrong with her. I have all along thought that this was a frustrated mental thing. And that most of it was due to the fact that I wasn’t around to be her mother for the past two years. There is nothing better than seeing your child’s eyes light up just because you can play Connect 4 with her. She did the other night complain of frustrated feet and it showed that what I thought was the truth.  she didn’t understand what the results said.. She thought that it meant I’m not going to get any better. After we explained that mommy still probably will get even better I just have to wait for new neural Pathways to grow. Which can take years. But with a wonderful family ,and a positive attitude I have no lack of faith and I believe that one day I will walk with a cane again. You can’t even put into words how happy and excited I am with this news. Since I’ve been home for Mexico one year, my husband has not had to pick me up and put me on the bed. He also used to help me on and ooff the commode. He has not had to do this at all and we are getting older and his back couldn’t take it much longer. I also wear underwear now and not depends. Most people wouldn’t be willing to share this information. But what a miracle I have had I want to scream it to the world. I have faith that new neural Pathways will grow. I will have much more good recovery. I  names my daughter faith because I have so much faith in the joy to come and that she would be beautiful my one and only child.

My OBGYN 8 years ago told me it would be dangerous for me to carry a child as I would have a severe multiple sclerosis attack after. Unfortunately he was correct. When my daughter was only 5 months old I became paralyzed from the waist down she was so young at 5 months she did not remember I ever drove. That I ever could pick her up. And that I could not go do fun stuff with her outside because the air often made me sick and I would just get too worn out. She is such a sweet little girl and she has so much empathy her heart.

I am so blessed to have the friends and family I have. They have given me so much hope. Plus they’ve raised $54,000 for my treatment in Mexico. I still can’t walk. And I still often use a wheelchair out. But I really would be totally eventually paralyzed from the neck down. My disease was progressing so quickly this treatment was my only hope. I hope for all of you if you have multiple sclerosis or many other diseases you seek out treatment in another country. Because our country wants you to keep living off the pharmaceutical companies. I know for me I take many many pills everyday. I do take less since my stem cell treatment. I have just been on medication so long sometimes I start to ask myself if I even need them or people just want to make money. I can’t wait for new neural Pathways to grow. For the first time in a very long time I have so much hope for tomorrow. I just have so much joy that I know this disease isn’t going any further. Even if I don’t get any other good results just knowing that it’s stopped the progression makes it worth the money. Peace and love- Laurelin 🌻

Post hsct stem cells for multiple sclerosis 13 months

There is an Arctic polar vortex in New York state. Stem cells have made it so severe cold and severe hot do not affect me as much but this cold is outrageous. My right leg still works but it is very stiff like a log however I can still walk with a walker. When I received stem cells everyone except for one person was from a very cold climate. Canada. Norway. Ireland. New York State. Etc. The cold and multiple sclerosis do not get along. This is the coldest it has ever been in New York state in my lifetime. It is 0 degrees out with a wind chill of -30. So the fact that I’m not in dire pain and I still can get around shows that stem cells have in proved my quality of life. Unfortunately it feels like I have plateaued in my progression towards multiple sclerosis getting better. However stem cells have stopped the progression of my disease so if this is all I get I am quite grateful. If it has not stopped the progression of my disease I would be bedridden now or in the future months to come. So the fact that I can walk with a walker is outstanding. I still hope to maybe walk with a cane comes summer times but I do not know if this will ever happen. I might just have to wait for them to find more of a cure for multiple sclerosis which Mexico is working on and we will return and a few years when they have perfected it. For now at least my disease has stopped progressing. Otherwise I would be bed ridden by now or in the few months to follow. Stem cells have been a great blessing in my life. I have gained 30 pounds of pure muscle in my legs which used to look like sticks. My bowels and my bladder usually work but sometimes I still struggle. I am not complaining though. I am so grateful for what I have gotten. And I may see more results once the weather gets better. The cold and multiple sclerosis do not agree with each other. I just wanted to give you a small check up today. On the coldest day of the year ever in New York state. The fact that autoimmune disease can be helped by stem cells leads me to believe that anyone with a similar disease should seek out stem cells. And they are working on a cure for my disease. Hopefully I will be around to see this happen. Peace and love to all my wonderful friends who helped me get stem cells and who are struggling with illnesses like mine today. There is hope out there. Do not lose faith. Peace and love Laurelin🌻