Waiting for a miracle

My immune system is now about two months old. Which means I’m always sick. I have to get back all the antibodies I have lost. And I have to get my immunizations again. In the meantime they told me my symptoms would be worse at first. Holy cow were they not lying. My symptoms are so bad I cannot walk even with my Walker. This is supposed to be totally normal but I feel horrible. It is hard waiting for a miracle that happened when your multiple sclerosis symptoms were worse than they were when you got stem cell treatment! I have to just wait. I have to just be patient. I know it is going to take a lot of time. But I’ve had multiple sclerosis 20 years and I am 36 years old I am ready for my life to start. I miss my own hair.






Now this is a picture of my real hair


It’s just not the same if you’re a girl. Our  hair is an extension of Who We Are., you truly have to see the inner beauty when you don’t have any hair as a woman. I’m just feeling very down today. My family and friends. Raised  so much money for me to get stem cells. And it is just discouraging when you feel worse than you did before you left for Mexico. I have to just stick with it. This is part of the plan. I have to keep telling myself time takes time. Be patient. Just wait. I feel bad for others in my family who I can’t help do anything around the house anymore and that used to. It has to be hard on them too. Hopefully as the months go I will have better reports. Right now I just need to know how to hang on and lift my spirits. I know so many people in the world have it so much worse than me. I shouldn’t be complaining.

Peace and love Laurelin 

Stem  Cell update

  • My new immune system is know about a month and a week old. First multiple sclerosis system came back in full force. Returning to the cold climate away from the equator made my symptoms extremely bad. It is to be expected that things would get worse before they got better. I am not completely bald but my hair is starting to grow back. I heard for many people the first things they noticed was that their bladder and bowels got better. And I am happy to report that mine slowly are. My bladder often works on its own and for the first time yesterday I had a bowel movement on my own! This may seem like no big deal to you. But to me it was wonderful. I honestly forgot what it felt like to have a normal one and they didn’t understand what my body was feeling until I realized I had gone! Before when I was in the hospital the doctors couldn’t even feel my bowels moving. Now if I can feel them moving and it is so weird. You are used to this sensation and I am not. I finally understand why people like to take a shit. It is still in up and down roller coaster though. I have days where I had a lot of strength and can clean. And then I have days where I can’t do anything but lie around and watch TV. But I do know stem cells are working. And I know in a few years I will be walking with a cane know it. So to all of those who donated to get me to Mexico let me just tell you it was a success it was worth it! Now I just have to find a way to get my last five IV injections. I have gone back to my old neurologist in Pennsylvania. He has known me for about 15 years and I have a feeling he will approve it and I will be able to get it in this country. But if for any reason that I cannot I am going to go back to Mexico to get it. I am not going to let stem cells take too much time because I didn’t get Five Silly IVs. I thought my gluten allergy had gone away because I ate flour in Mexico and was fine. When I returned to America I found that some things I could eat and other things made from flower caused me problems. So the people in Mexico were correct. In this country some, corporations and additives to their flour. Is it the additives that cause me problems. Not actually the wheat itself I only tell you this because I know many people in America think they have a gluten allergy. I know some people have celiacs disease and then is different. If you like me just have a sensitivity to American wheat flour this might be the same problem I have. Sorry I’m doing well and I am just still waiting my stem cells to grow. And find out about getting those five IVs I need. And I’m awaiting my hair to grow back. It is awfully cold in New York without hair. Take care and thank you for getting me as far as I have gotten.
  • Peace and love Laurelin 

Last day of stem cells in Mexico!

My white blood cell count is finally up to 1600. So I finally was able to get my first of six shots that I need for my bone marrow to help the stem cells grow quicker. Now I just have to wait two days to get to the airport and go home to my beautiful daughter and my wonderful cats. I’m still not back to Baseline but I’m sure I will be in the next 3 months. I have a caregiver planned for those months already. Now all I have to do is wait for the stem cells to grow and wait for the miracle to happen. It could happen in a few months it could happen in a few years but it’s going to happen. And I am so happy and excited now for the future. I will keep you posted on how it goes and I am so blessed that I was able to receive this treatment in Mexico as it is not available in my country. The United States better get on the ball soon. Take care and I will blog to you all soon

As  always peace and love Laurelin